Fletcher is the sweetest little guy you will ever meet. He can brighten the darkest of days and put a smile on anyone’s face. Although he is non-verbal he has a way of connecting and communicating with people on a deeper level that is beyond words.
On April 27th, 2018, Fletcher and his twin sister Elliot were born. We got to take them home right away. As far as we knew everything was a normal, as expected, delivery with two pretty typical and adorable babies.
When Fletcher was a couple months old we started to notice that he was a lot more “floppy” than his sister. He wasn’t gaining the same head control and other bodily movements she was.
When he was 6 months old he got an MRI, which confirmed what we already suspected, that he had at some point in utero acquired a brain injury. Fast forward another 6 months and we also received news of a very rare genetic syndrome as well - cardio facio cutaneous syndrome.
Since then it has been a whirlwind of continued diagnoses in regards to Fletcher’s very severe and very complex movement disorders related to his underlying medical issues. Pain management has been a top priority for such a long time, and even with all of the pain he suffers from every day, it’s rare to see him without his million dollar smile.
He has been through so much in his short 3 years of life, and it has not been easy on him, or anyone else in our family. He is hands down the bravest and toughest kid that I’ve ever met, and his 5 year old brother often lets us know he thinks Fletcher would be a great wrestler when he grows up because he’s so tough! . He gives so much love to everyone around him, and I feel so lucky to be his mama!